Bunny's TMI

More than you ever wanted to know about what goes on in my life and my brain.

Pregnancy update

So turns out the up side of being pregnant with Ehlers-Danlos is that I only had reflux (and shortness of breath when my stomach was full of gas) for a week or two. Then my rib cage expanded again and it went away. I’ve been doing some isometric upper body exercises my chiropractor recommended, that plus avoiding lifting too much and wearing my rib belt seems to have the back pain from the rib expansion under control. I finally thought to measure my rib cage and I was either a 32 or 34 in bra band before and am up to 35.75 now. It’ll be interesting to see how quickly it drops after the baby comes (if it does, the chiropractor might have to help with that). My ribs definitely went through two levels of expansion, since first I couldn’t fit (band wise, not cup wise) into my regular bras, and then the ones I got to sleep in that were loose fit just right. Those sleep ones are now tight, but it works out since they help hold my ribs in place some, so I don’t always have to have my rib belt strapped on.

My stomach finally got big enough that I had to go back from the new 4″ rib belt to the old 2″ rib belt. I use the 4″ one around my hips sometimes, not that it seems to help a ton. I also had to get the seat cushion with the tailbone cutout for riding in the car and sitting on chairs when we’re out an about (especially restaurants). It definitely is a big help since my tailbone was starting to get pretty painful.

Recent updates, about 3 weeks ago my hips went from being fairly stable with the pool exercise and weekly chiropractic to needing my husband to adjust them daily. And earlier this week they got looser again and now need adjustment multiple times a day. Yesterday I started getting this weird thing where my right hip gets hot. I don’t know if it’s a blood flow thing or a nerve thing. Thankfully it’s not painful, just odd.

I’m now 40 weeks and 6 days. No obvious signs that he’s going to make his appearance, but my mom’s labor with me (first child) was 6 hours, so I might not get much warning when he decides to show up.

Varicose veins and piles are my other issue, but they don’t itch/hurt and are pretty normal during pregnancy, so I’m not sure I’d blame them on the EDS. Same goes for the allergy developments (can’t wear metal rings, had to buy 100% cotton underwear and pants). I do finally have a new craving – peanut M&M’s. It’s not super strong though, and I’ve always loved them, so liking bananas in the first two trimesters is still my “weirdest” food craving.

I’m also in the last month getting more edema in my legs down to my ankles, but my feet haven’t spread out or swollen yet – though I don’t spend a ton of time standing, they get painful pretty quickly if I do. Especially if I don’t wear my slippers or shoes to provide cushioning. I think I’m pretty safe to assume my shoes will continue to fit after the pregnancy.

I don’t think I’d consider myself a pregnancy unicorn – I’m not having any of the glowy happy earth mama woman power type feelings, but I’m definitely a pregnancy zebra in that it’s been really physically easy. But only because my husband is able to support us so I don’t have to work, and because he’s been able to do 100% of the driving. Those two things have allowed me to avoid doing anything to exacerbate my joints – otherwise I’d probably have been in severe pain throughout the pregnancy. I over did it a few times getting the yard/house ready, so I have a good idea of how miserable it could have been if I’d been in pain like that daily.

I’ve been lucky that the increased blood volume has almost completely cleared up my POTS – gonna miss that when it goes away, but I’m hoping it doesn’t come back as bad as it was now that I’ve been exercising in the pool.

My migraines cleared up around the middle of the second trimester, we’ll see if I get lucky and they stay gone.

Even my digestive system is doing better than ever – most likely due to eating a bit healthier, all the fiber pills, magnesium, pre & probiotics and HCL.

So all the things I thought pregnancy would make worse, actually got better instead except for my joints. And even those were improving more than pre-pregnancy (with the pool exercise) until this last month. Gardening is the only thing I’ve really missed (I hate driving anyway) that I’m looking forward to getting to do again once the relaxin production goes back to normal pre-pregnancy levels.

No Comments »

Ehlers-Danlos with a side of pregnancy

The new rib belt is helping a lot. I was starting to toss and turn all night from my ribs hurting laying on my side (no laying on your back after 20 weeks), and it seems to be taking care of that for now. My hips still hurt, but I only have to turn over once or twice a night due to that.

Trying to get the recommended 80-100g of protein a day that the Bradley method recommends to hopefully prevent premature rupture of membrane  (prom).

And finally interviewing doulas, which I had planned to do a month ago but got sick instead.  Although many are only on call after a certain number of weeks, I’m relieved to find it’s not a universal policy since preterm labor is also a risk. 

No Comments »

Pregnancy update

The upper back pain is all from my ribs coming apart. Been trying to wear my rib belt more and plan to get a second one for the lower portion of my ribs.

Other than joint stuff I had a few days of very mild but constant heartburn.

Can’t wait to see the chiropractor tomorrow. 

No Comments »

Pregnancy and Ehlers-Danlos

Since I did a lot of searching and only a little finding, I figured I should share my experience with being pregnant and having EDS.

I already had POTS, and so far (week 20), it’s been waaay better since getting pregnant. Probably due to the increased blood volume.

I started having some round ligament pain in week 6-7. It’s just started getting at bit worse around week 18-20.

Week 21 starts tomorrow and I’ve just started to have back pain yesterday and low back pain today. And I was holding my lower abdomen a lot, so probably time for a belt already even though my stomach isn’t very big yet.

I don’t have vascular EDS, we got the gene test to be sure. So far pre-term labor is the only risk the doctors have mentioned.

My joints are looser and so far I’m needing to see the chiropractor weekly (he uses a drop table, not adjustments – no crunching!) and he’s taught my husband a couple things to do at home that help. I can’t drive more than 5 minutes without joint/back pain, so needing a ride to every appointment has been the worst thing so far. Even walking messes up all my joints, so I’m having to stick to swimming. And grocery shopping I have to keep short and I still hurt by the end of it from walking.

I’m having new pregnancy migraines that a nap on my tempurpedic with a heat pad on my head seems to cure. Napping on other beds with the heat pad didn’t help, had to get some cranial sacral work done instead. Working on the muscle/ligaments that connect from the clavicle to the skull helps too. So I think these migraines are EDS related.

I’ll try to make more updates as things progress.

Normal pregnancy stuff: first trimester fatigue, increased sensitivity – so more contact dermatitis.

No Comments »

T

isthisableism:</p><br />
<p>Washington Post: Grand jury rejects criminal charges in death of Robert Saylor, man with Down syndrome<br /><br />
Robert Saylor, a 26-year-old man with Down syndrome, sat in a movie theatre after having watched a movie, acting as if he was going to sit through the movie again without buying another ticket.That prompted three police officers to kill him.Friday, a grand jury determined that no crime was committed, even though his death was ruled a homicide.</p><br />
<p>What?

isthisableism:

Washington Post: Grand jury rejects criminal charges in death of Robert Saylor, man with Down syndrome

Robert Saylor, a 26-year-old man with Down syndrome, sat in a movie theatre after having watched a movie, acting as if he was going to sit through the movie again without buying another ticket.

That prompted three police officers to kill him.

Friday, a grand jury determined that no crime was committed, even though his death was ruled a homicide.

What?

(via shad0ww0rdpain)

No Comments »

T

Live and let wear

Choice

No Comments »

T

“We are here because we love the young folks, and we want them to know that there is an older generation of brothers and sisters of all colors, who are willing to put their bodies on the line so that justice can roll down like water and righteousness like a mighty stream.”

Cornel West before being arrested at Ferguson. (viawhitecolonialism)

(via shad0ww0rdpain)

 

No Comments »

T

soulrevision:</p>
<p>Cornel West asks, “will we be allowed to enter a PUBLIC building??” </p>
<p>Police respond by arresting him.</p>
<p>This is your America, folks.</p>
<p>#Ferguson #FergusonOctober #MoralMonday

soulrevision:

Cornel West asks, “will we be allowed to enter a PUBLIC building??”

Police respond by arresting him.

This is your America, folks.

#Ferguson #FergusonOctober #MoralMonday

(via shad0ww0rdpain)

No Comments »

T

theuppitynegras:

dynastylnoire:

lisawithabee:

spacedmeanssomethingdifferentnow:

sunfell:

darkjez:

djphatrick:

A 13-Year-Old’s Slavery Analogy Raises Some Uncomfortable Truths in School

In a bold comparative analysis of TheNarrative of the Life of Frederick Douglass, Jada Williams, a 13-year old eighth grader at School #3 in Rochester, New York, asserted that in her experience, today’s education system is a modern-day version of slavery. According to the Fredrick Douglass Foundation of New York, the schools’ teachers and administrators were so offended by Williams’ essay that they began a campaign of harassmentkicking her out of class and trying to suspend her—that ultimately forced her parents to withdraw her from the school.

In her essay, which was written for a contest, Williams reflected on what Douglass heard his slave master, Mr. Auld, telling his wife after catching her teaching Douglass how to read. “If you teach that nigger (speaking of myself) how to read, there will be no keeping him,” Auld says. “It will forever unfit him to be a slave. He would at once become unmanageable, and of no value to his master.”

Williams wrote that overcrowded, poorly managed classrooms prevent real learning from happening and thus produces the same results as Mr. Auld’s outright ban. She wrote that her white teachers—the vast majority of Rochester students are black and Hispanic, but very few teachers are people of color—are in a “position of power to dictate what I can, cannot, and will learn, only desiring that I may get bored because of the inconsistency and the mismanagement of the classroom.”

Read more: Education – GOOD

truth.

I’m so freaking proud of this child.

“The conservative Frederick Douglass Foundation gave Williams a special award, saying that her essay ‘actually demonstrates that she understood the autobiography.’ They have also reached out to the school for an explanation of the 13-year-old’s treatment.”

She spoke truth to power.

Good job helping make her argument more solid by kicking her out of class and forcing her parents to take her out of school.

(Source: daughtersofdig, via shad0ww0rdpain)

No Comments »

T

axispowersshella:</p><br />
<p>auplaz:</p><br />
<p>Alright guys, this shit got me heated. <br /><br />
So today as I was getting ready for school, I get a call from my youngest sister’s elementary school clinic. My sister gets on the phone and tells me she is sitting out of class because her skirt is too short. “You need to bring me one that goes down to my knees, they said,” is what she told me.<br /><br />
Quick recap: My sister is eleven years old, in fifth grade, and has some mental and physical disabilities. She’s the tallest girl in her class. Also, the dress code states her skirt must be down to her fingertips, not her knees.<br /><br />
When I get there, I insisted I see her instead of just dropping her stuff off. I was not suprised to find her with a skirt obviously within the rules of the dress code. I asked her what class she was missing and she told me math. She’d been sitting out for atleast twenty or thirty minutes while she waited for me to come.<br /><br />
She only learns things at about a third of the pace as everyone else in her class. Even missing this short amount of time means missing a lot of information for her. Just to recap: she has to sit out of class because of the length of her skirt. She can’t even just sit in her classroom while she waits for me, because apparently that’s too distracting. To whom, you ask? I can’t really tell you. Are ten year old boys, fifth grade boys already old enough to be sexualizing her to the point that they were going so insane with horniness that they had to whisk her away until she could put on something ‘decent’. <br /><br />
So not only are the sexualizing a fifth grader, they are giving her different rules for the dress code based on her height and making her miss valuable class time. This bullshit needs to stop. Eleven goddamn years old and she’s already being taught her body isn’t her own anymore, that she’s being too provocative if she wears a skirt to the same standard as all the other short, skinny girls in her class just because she looks older.<br /><br />
As a P.S., I would like to point out that she is already bullied because of her disabilities. Pulling her out of class and making her change is even more of an embarrassment, and only leads to more teasing. </p><br />
<p>please signal boost this.<br /><br />

axispowersshella:

auplaz:

Alright guys, this shit got me heated.

So today as I was getting ready for school, I get a call from my youngest sister’s elementary school clinic. My sister gets on the phone and tells me she is sitting out of class because her skirt is too short. “You need to bring me one that goes down to my knees, they said,” is what she told me.

Quick recap: My sister is eleven years old, in fifth grade, and has some mental and physical disabilities. She’s the tallest girl in her class. Also, the dress code states her skirt must be down to her fingertips, not her knees.

When I get there, I insisted I see her instead of just dropping her stuff off. I was not suprised to find her with a skirt obviously within the rules of the dress code. I asked her what class she was missing and she told me math. She’d been sitting out for atleast twenty or thirty minutes while she waited for me to come.

She only learns things at about a third of the pace as everyone else in her class. Even missing this short amount of time means missing a lot of information for her. Just to recap: she has to sit out of class because of the length of her skirt. She can’t even just sit in her classroom while she waits for me, because apparently that’s too distracting. To whom, you ask? I can’t really tell you. Are ten year old boys, fifth grade boys already old enough to be sexualizing her to the point that they were going so insane with horniness that they had to whisk her away until she could put on something ‘decent’.

So not only are the sexualizing a fifth grader, they are giving her different rules for the dress code based on her height and making her miss valuable class time. This bullshit needs to stop. Eleven goddamn years old and she’s already being taught her body isn’t her own anymore, that she’s being too provocative if she wears a skirt to the same standard as all the other short, skinny girls in her class just because she looks older.

As a P.S., I would like to point out that she is already bullied because of her disabilities. Pulling her out of class and making her change is even more of an embarrassment, and only leads to more teasing.

please signal boost this.

(via shad0ww0rdpain)

No Comments »