Since I did a lot of searching and only a little finding, I figured I should share my experience with being pregnant and having EDS.

I already had POTS, and so far (week 20), it’s been waaay better since getting pregnant. Probably due to the increased blood volume.

I started having some round ligament pain in week 6-7. It’s just started getting at bit worse around week 18-20.

Week 21 starts tomorrow and I’ve just started to have back pain yesterday and low back pain today. And I was holding my lower abdomen a lot, so probably time for a belt already even though my stomach isn’t very big yet.

I don’t have vascular EDS, we got the gene test to be sure. So far pre-term labor is the only risk the doctors have mentioned.

My joints are looser and so far I’m needing to see the chiropractor weekly (he uses a drop table, not adjustments – no crunching!) and he’s taught my husband a couple things to do at home that help. I can’t drive more than 5 minutes without joint/back pain, so needing a ride to every appointment has been the worst thing so far. Even walking messes up all my joints, so I’m having to stick to swimming. And grocery shopping I have to keep short and I still hurt by the end of it from walking.

I’m having new pregnancy migraines that a nap on my tempurpedic with a heat pad on my head seems to cure. Napping on other beds with the heat pad didn’t help, had to get some cranial sacral work done instead. Working on the muscle/ligaments that connect from the clavicle to the skull helps too. So I think these migraines are EDS related.

I’ll try to make more updates as things progress.

Normal pregnancy stuff: first trimester fatigue, increased sensitivity – so more contact dermatitis.