I just heard about Kadiant today because they did an online assessment that did not accurately diagnose someone’s daughter.
Unfortunately, it is absolutely harder to get girls diagnosed because they present differently and they mask habitually. I was diagnosed officially at 42 after self-diagnosing at 39.
- Women and Autism: Get a Diagnosis, Not Gaslighted | Psychology Today
- Masking and Mental Health in Women with Autism | Psychology Today
- We Need Better Diagnostic Tests for Autism in Women – Scientific American
- Women With Aspergers – Penelope Trunk Careers
- Read this if you think you don’t have Aspergers – Penelope Trunk Careers
- Here’s why there are no women over 40 in your office – Penelope Trunk Careers
- Signs and Symptoms of Autism in Girls (verywellhealth.com)
- Autism in Women: Signs, Diagnosis, and Treatment (verywellhealth.com)
One of the first special interests of many autistic girls is social rules – so they learn to mask very early and very well. Then they get seen as “just” shy and anxious. I can’t find the meme about boys vs girls at the moment.
- Unmasking autism – unlearn shame and nurture a more inclusive world : Life Kit : NPR
- Screening & Diagnosis | Autism Society
- Autistic people and masking (autism.org.uk)
- Autism Masking: What It Is and More | Psych Central
- What is autistic masking? – Autism Awareness (autismawarenesscentre.com)
- Now You Know All About Autistic Masking, How Do You Unmask? | by Jae L | Autistic Discovery | Medium
If the person diagnosing doesn’t know how to check for the existence of a mask, they certainly aren’t going to be able to see around/behind it. And most autistic females don’t even know they are masking, so they can’t “just” drop it for the assessment.
- Autism in Women: Why We Get Diagnosed Late (acfmw.com)
- The Lost Girls – Why So Many Girls Are Undiagnosed with Autism Autism Journey
- Why Autism in Girls Is Often Missed Until Adulthood | AMITA Health Blog
- Why Girls are Missed for Diagnosis and Why That’s so Important – Autism Parenting Magazine
If this happens to you, ask which diagnostics were used. Ask them to try another one or for a second opinion.
Also, a key thing that many questionnaires don’t tell parents that when a question asks what their child can do, they don’t mean what CAN they do – with support/under the right conditions/sometimes, the question is actually asking what they can do completely independently and without supports (like visual schedules, etc.) at least 80% of the time.
The other thing to do is look at the CDC milestone lists and see which things are/were missing/delayed.
I made this health history form to help me figure out some of those things by looking at journal entries, texts, emails, photos, etc. to find the kind of information often asked for.
ADHD, anxiety and hyperlexia are all common signs of autism in females. Collecting and socially acceptable special interests also can be indicators. An obsession with horses and/or ponies that lasts longer or goes deeper than their peers. As kids it can be collecting dolls or certain toys, especially if they arrange or organize them instead of doing pretend play. As adults, shoe/purse/jewelry/makeup collections are common.
Your daughter probably isn’t “just being dramatic” – she’s anxious and doing whatever is needed to get your attention, or she’s overwhelmed by emotions she doesn’t know how to handle.
Anyone and everyone can slip into fight or flight mode – and the prefrontal cortex doesn’t mature until 20-25 and for neurodivergent individuals it’s often even later.