I didn’t think to share this on my own, one of my wonderful friends suggested it.
I was reading a book in a waiting room and got triggered and was about to break down crying.
I took a deep breath and asked myself if I could wait until a better time. I thought through the day and figured out a time when I’d have more privacy and promised myself I would come back to this and allow myself to properly grieve and that I would do it today and not forget about it or stuff it down trying to ignore it. It was just a temporary pause for a better time.
And it worked, I was calm the rest of the day and when I sat down outside the library before my next appointment when I had about 20 minutes to spare, I asked myself what had triggered that moment originally. I remembered and was right back in it but this time I just curled over my knees and cried and let it out. I think I only cried for 5 or 10 minutes so I even had time to recover afterwards before walking to my appointment.
I’m sure this trick won’t always work, and it requires you trusting yourself (or your systems – like to do lists or alarms).
And when I say I ask myself, it’s more like I ask my inner parts. Something like “Hey gang, can we hold onto this until later today? I promise I won’t forget and just stuff it down.” That’ll be fore another post on IFS – Internal Family Systems.
If your kid has a hard time with getting a shot, how do you square that with teaching them body autonomy?
What we’ve done is focused on your autonomy ends where another body begins.
If you need to spin around with your arms out – that’s fine. But you have to do it where you have space to not whack into someone else, because then you’re not respecting their body.
Vaccines might be trickier to understand for kids. But your right to go out in public and spread germs and avoid a shot ends where infants, old people, immuno-compromised and allergic folks are risking death because you couldn’t tolerate getting a shot.
It’s totally fine to cry and say you hate getting shots. It’s fine to ask for help with your anxiety. It’s not fine to just avoid it.
Here’s some of the things we’ve tried:
As an infant, nursing during or immediately after to soothe.
Spreading out the shots so there were no more than 2 per appointment even if that meant going back in two weeks for an extra appointment.
Having the kid sit on a lap and get squeezy hugs.
Using a blindfold or hat pulled down over the eyes so they couldn’t see.
Breathing practice.
Reading books about it or social stories.
Playing pretend of it (practicing what will happen & what we’ll do). You can try to get really accurate using a cold wet wipe on the arm and something to gently poke with like a pen or knitting needle.
Getting our own shot beforehand so they could see what happens.
Listening to music.
Using Buzzy Bee
Wearing a tank top so they don’t have to feel their sleeve being pulled up.
Having the nurse/doctor show them the needle (what you imagine is often scarier than reality). “Oh, that’s really small.”
Bringing our own preferred bandages.
Treats afterwards to celebrate their bravery and good dead.
Agreeing to pamper them for a couple days after while their arm is sore.
Talk about how they’re literally being a hero and saving lives.
Listening and validation their feelings about getting shots. (It’s scary, it hurts, I’m mad that I have to do it, I’m frustrated & disappointed they haven’t made nasal sprays for everything already. It’s annoying that it keeps hurting.)
Getting anxiety treatment/therapy.
Brushing protocol with an occupatinal therapist to help reduce sensory sensitivity.
This was what we tried and I’m sure there are other strategies out there as well. Just continuing to try to improve the experience and listening to your kid is a good way to reinforce that you’re trying to respect their body as much as possible – without risking other people’s lives.
We also talked about how in extremes, not respecting other people’s autonomy will result in losing ours. For example, adults who commit assault go to jail and lose their autonomy & freedom.
Even if getting a shot is super painful and we get miserably sick for a week every time – those are still temporary. Death is not. And while most often you don’t know who you’ve killed with your germs and you can live in ignorant bliss, sometimes you do – a baby cousin, a beloved grandparent. And you can’t undo what you did, you would just have to live with the regret.
A really informative video about vaccines and the (lack of) risk.
It’s estimated that childhood sexual abuse (CSA) affects 1 in 5 children ages 0-17.
Which means 1 in 5 adults is a survivor of CSA.
CSA is traumatic even if you don’t remember it.
And anyone thinking 0 year old babies aren’t at risk – we know I was assualted by a grandparent when I was 1 something. We don’t know if that’s when it started or just when I was able to verbalize it.
Why am I telling you this?
Because prevention is the cure. And to prevent the problem you have to be aware of it. And if no one talks about it, how can anyone be aware?
Also – it was NOT MY FAULT. And I have NOTHING to be ashamed of.
And neither do you. It’s ok to cry. Better to process the grief than to turn it inward or lash outward.
Ok, so now what? If you’re a survivor – get trauma treatment. Regular therapy most likely won’t help.
If you’re a parent – educate yourself and your kids about consent, body autonomy, tricky people and bad secrets.
Stranger danger isn’t a thing. Strangers are EMTs and store clerks and firefighters who you’ll rarely interact with and will usually be perfectly safe doing so, possibly even life saving.
Tricky people who don’t respect body autonomy and ask kids to keep bad secrets are the dangers. And they’re usually (around 90% of the time) family or friends or other people who aren’t strangers – like some priests and coaches. Just like most kidnappings and Amber Alerts are due to non-custodial parents taking the kid(s), not strangers.
Brain-based Parenting – uses very diplomatic terms such as “blocked parenting” about the brain differences (caused by trauma, though I don’t think it states that part directly, it focuses on how to correct difficulties).
Books for kids I own:
Amazing You! – Talks about private parts including using the correct names for them. What it doesn’t directly mention is that if your kid suddenly acquires a new nickname for a private part, that’s a sign you should investigate where that nickname came from. Being comfortable talking about private parts means that if something happens involving them, your child is likely to be more comfortable talking about it with you.
Looking back at the posts on learning to unmask my Autism – turns out that I finally unmasked enough to find the trauma mask. So now I get to start over again figuring out who I actually am. Whee!
I struggle with cPTSD. This is a way I found to communicate with my partner about my status so they can be more considerate without getting triggered themselves.
It’s like living in bear country. People who don’t live in bear country don’t worry about bears at all. I’m always at some level of alertness/activation if I’m not in my safe space.
bear country – I have to be alert for signs of bear, so I can’t be totally relaxed. bear tracks – I’m relieved the bear isn’t around but disappointed to see its tracks. audible something – My attention is split trying to figure out if what I’m hearing is a bear. audible bear – My attention is on the audible bear to make sure it’s not coming closer. visible bear – Even more focused on the bear and being prepared to move away. approaching bear – I’m trying to move away from the bear and get safe charging bear – I’m running away trying to get safe bear attack – I’m no longer functional (may go non-verbal, etc.)
If you get between me and the bear you’re increasing the danger level for me since I can’t see it. If you don’t move when I ask then I’ll need to move. If you follow me and block my view again then you start to become a bear yourself. If a bear is too close I might become a bear myself in defense.
It has really helped reduce the amount of defensiveness and triggering. I don’t have to explain if they are the bear, I’m the bear or something else entirely (headache, etc.) – I just say “bear” and they give me space.
This is just a metaphor for communication about the sympathetic nervous system and how activated it is — also referred to as being flooded, triggered or dysregulated.
Here’s one from the School of Life relationship playlist I especially like:
Quite a few of the School of Life videos reference ideas that come from the Gottman research. While I tried to apply the Gottman research to my relationships, I now realize that my unaddressed cPTSD/attachment trauma was getting in the way.
I can’t say it’s exciting to see stuff like this coming out, but I think it is reassuring? Maybe a relief? I know I’m not alone, my concern was how many other people were suffering like me before I found out about POTS and how hard it was to find information on it.
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