Song snippets

These were in my head after choir last night, so I tried something new. I sang them into my recorder last night instead of journally and wrote them up today.

-indicates the title

-Rumination

When you have a thought

That you just don’t want

And even your dreams it tries to haunt

Just gotta know

to let it go

It’s rumination, yeah let it go

It’s just a thought, it doesn’t have to be

hanging around, cluttering up me

Go away

Hear me say

I don’t want to think you anymore today

-Jot it down

When you have a thought, can’t let it go

Write it down and it will go

jot it out

just put it down

Put some weight down in the ground

Ground yourself

and you will see

That you will start to feel free

Just put it down and let it go

-Stuck Thoughts

Got a thought running through my head

worrying about the thing I said

don’t know why I can’t let it go

Ruminating, oh no

So when it’s time to put it down

Get some paper and write it down

Just jot it down, type it up

Draw it out, you know what?

Find a way to set it free

and let it go away from thee/me

-It’s Just a Thought

It’s just a thought

Reality is what it’s not

Just a thought

I can let go

Or make it real if I want it so

Just a thought

Just a thought

That’s all it is

It’s just a thought

Reality is what it’s not

-Disconnected

What do I feel?

I don’t know how to make it real

Somehow disconnected

Don’t know what

-Gotta Reconnect

When I’m feeling so disconnected

I just gotta reconnect

Gotta think about what the heck my body needs

My body wants

What sensation my body haunts

That’s all I gotta find out

Got reconnect without a doubt

Gotta reconnect, gotta reconnect

Yeah just gotta reconnect

Checking in

Head and neck

Shoulders and chest and back and thighs

Knees and elbows and ankles

Take a big, big sigh

Send it through, up and back

Figure out what your body needs

Checking in just to see

Do I need a drink? Do I need to eat?

Do I need to pee or take a nap?

Do I wanna hug or just to cry?

All I gotta do is just sigh.

<big breath in, sigh it out>

-Pain Song

Hello pain my old friend

I see you’re back again

What are you trying to tell me?

Practicing listening, you’ll see

Do I need a rest?

Do I need to eat?

Do I need something to feel complete?

Hello pain, listening

Tell me your story

I’ll hear you sing

Sing your song

Sung through me

Hello pain

<breathe>

-Finding a Way Past Fear

My pain tells me

who to charm

It tries to keep me safe from harm

Fight, flight, freeze and fawn

Pain helps me know which one

I gotta use to defend myself

cause I can’t rely on anybody else

wait, oh no

don’t think that’s right

I don’t think I’m alone this night

Not the only one here

Not the only one to hide in fear

We’re not alone

Just gotta breathe

Remember that we are a we

Someone else is out there too

Feeling the same way as you

Just gotta hang on

Hold on tight

Eventually it’ll turn out right

If you just keep looking

and searching on

Reaching out

For that helping arm

holding out the helping hand

that is what

is in the plan

Just gotta search and reach it out

grasp that hand so they’ll pull you out

of the stark pit that’s full of fear

and pain and sorrow and not much cheer

You just gotta go

Keep on

eventually, it’ll come

-Titrate Your Pain

You got to titrate your pain

When you’re caught in the rain

And you just don’t know when

you’ll feel pleasure again

Just let it come out, bit by bit

Just enough so you’re not overwhelmed by it.

That’s what it takes to let it go

To let your tears safely flow

Just gotta titrate it out

Bit by bit

That’s how you can let go of it

-I’ll Be Alright

Gotta be free

Gotta move on

Gotta let it

Out in a song

Gotta let go

Gotta just know

I’ll be all right

If I say so

I’ll be all right

Yes, I’ll be all right

Because I say so

I’ll be all right

-Ask For Help

Ask for help

People don’t know that it’s hard for me

To ask for help

No one can read your mind

So ask for help

It’s okay to let people know

You need some help

So just ask for help

That’s how you help yourself

Link Tracking – Pain Treatment

I’m working on reconnecting with my body so that I can manage my pain appropriately and do my physical therapy exercises.

Pain Prevention

Heat vs Pain

I’ve been using the Sunbeam heat pads to target my mid-back pain. Sometimes they are enough for my cervicogenic headaches, but the last one I had it was not. Next on the list is trigger point injections to help with my mid-back pain.

Even just raising my arms is enough weight to cause my rib/spine pain to flare up. So then I have to go sit and heat treat to prevent it from cascading into another cervicogenic (mine last three days usually) headache that was misdiagnosed as a migraine.

Power over Pain

I’m recovering from the hour drive to and from the Stanford Pain Clinic but I am hopeful as they have Physical Therapists, Occupational Therapists and options for trigger point injections and emergency pain meds. I’m hopeful that after the PT/OT evaluations they’ll be able to refer me to someone more local that can help with the Muldowney Protocol.

Meds for Bipolar & Pain

So far my brain fog is a little better, but I still can’t focus on things I could physically handle. I just found out that some anti-psychotics also help with pain, so that might be something to look into.

I am not a doctor, just sharing my experience. And info from a friend who is also not a doctor:
Cymbalta, Lyrica, Savella
Often Lyrica & Savella are taken in tandem

Anxiety = Fear = Avoiding Pain

My friend P told me that journaling/brain-dumping is what you do to avoid/manage/control anxiety.

I just figured out my own sleep issues.

To sleep you need to be three things:

  • Tired enough
  • Comfortable enough
  • Safe enough

Right now I’m tired enough, but either not comfortable or don’t feel safe.

Comfort is the just right between pleasure and pain.

If I don’t feel safe, I’m scared of something and until you can identify what you’re afraid of, you can’t fact check if it’s a reasonable fear.

My spouse is snoring beside me and my child is in bed asleep, so they are all safe, comfortable and tired enough.

I know right now I can’t make good decisions because I’m too tired. So I need to document my choices.

I think I need to better define comfortable enough to sleep.

stub Jan 30 2023

Coming back to this in April 2023, the feeling safe enough seems key. After two involuntary hospitalizations I have been doing EMDR to recover from the trauma. This especially was impacting sleep as I had started to have nightmares, which I hadn’t had in years, maybe since starting on anti-anxiety meds?

It also reminds me of the book The Body Keeps The Score about how the body registers trauma. I haven’t read it yet, but I have heard good things about it.

Ehlers Danlos & Neurodiversity Research

I’m so excited, a friend of a friend just shared all this:

Dr. Eccles specific research areas are Neuroscience, Psychiatric and neurodevelopmental features of connective tissue disorders, Mechanisms of chronic pain and fatigue.

The quickest way to see a summary of all her 67 published medical research with active links to each is here: https://www.researchgate.net/profile/Jessica-Eccles-3

Some titles of pubs just within the last 2 years:

  • Towards a Neurodiversity-Affirmative Approach for an Over-Represented and Under-Recognised Population: Autistic Adults in Outpatient Psychiatry
  • Joint Hypermobility Links Neurodivergence to Dysautonomia and Pain
  • Variant connective tissue (joint hypermobility) and dysautonomia are associated with multimorbidity at the intersection between physical and psychological health
  • Connecting brain and body: Transdiagnostic relevance of connective tissue variants to neuropsychiatric symptom expression

You Tube Videos:

Pain Response Tools

Thumb pain, great video, very concise, text description also (below):

Patient: supine Doctor: holds wrist facing medial, lateral hand holds unlar and radius for stabilization Seg. Contact: base of 1st metacarpal Contact point: medial hand grasps thumb so that little finger pulls superior to inferior on base of metacarpal Thurst: slow pull lateral to medial

https://youtu.be/s1pwU43HUBI

This one is concise, no text description though: https://youtu.be/M04FDmRMAIQ

MCL – metacarpal ligament?